Hello. We have no new news on Trey’s front, but I am writing to invite you all to donate blood or sign up to become a part of the Bone Marrow Registry program where you live.
Ryan and I have been talking and thinking about doing it for years, but we just never got around to it. Since making our decision not to go the transplant route with Trey, we have had some time to breathe and think. And we have decided to donate blood and become a part of the Bone Marrow Registry with the Canadian Blood Services: www.blood.ca.
Fortunately we are not having to face the unbelievably terrifying prospect of watching our child go through chemotherapy and transplant, and possibly not making it through that process. But for those who are going through it, and for those who know that they or their child need this treatment to live, I cannot imagine anything worse than knowing they need transplant, and not being able to get it because they cannot find a match.
It is a personal decision to give blood or donate Marrow, but I am inviting you to at least think about it. And feel so incredibly fortunate if you are not having to face a situation like this. The more potential donors we have out there, the more likely it is that children and adults will be able to find a match when they need it.
Not much news on the ERT front. Everyone’s on holidays!! I hope you are all having a relaxing and wonderful time with your family and friends during this holiday season. We wish you a Happy New Year and a whole bunch of hope and love for the New Year.