February 19, 2007 mcfadyena

Infusion #3

Linnae, at our wedding on October 1, 2005, with her 2 sleeping kids.


We arrived at the MDU at 7:15 am. Trey had his temperature, blood pressure, weight, height, and a listen to his chest done, and then the Emla was put on. The infusion started at 9:00 am, ended at 12:25, and we were leaving the hospital by 1:30 pm. No reactions, no hold ups, everything went well. Have I mentioned how awesome the MDU staff is? Trey actually enjoys being there. His nurses are so nice and he is not even phased by the “arm hugs” (blood pressure cuffs) and temperature measurements every 15-30 minutes, and he is only barely phased by the accessing and de-accessing of his port. We also had a visit from Ryan’s mom, Gayle, and a good friend of ours, who has 2 kids of her own, and used to babysit Trey while I was in school, and who just finished training/school to become an air traffic controller, Linnae. Congrats, Linnae!!

CONTACT US AND SHARE YOUR STORY!

We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!