Always a trooper. #Brave

Quick…well not that quick, visit to Sick Kids Hospital in Toronto today for Orthopaedic Surgeon followup. It was a 4 hour wait (really, this needs to be fixed) to see the surgeon, but he had great news!

Isaac’s kyphosis (curvature of the spine) has improved by 4%, and his slipped disc has corrected itself. While we can’t be certain, we’re convinced it’s the effect that Elmiron has had on him.

Truly grateful.

MPS Dads – West Coast Edition ;)

Had a great visit with Dane Sadownyk today on the anniversary of Aleena’s treatment approval! What a great family, and an inspiration to all families fighting MPS.

I look forward to many years working together, Dane. Thanks for a great visit.