10 October, 2013 mcfadyena


photo 1Hi All,

It’s been a while since I’ve done an actual blog posting – as usual, things get busy and it falls down on my list of things to do (a list that never seems to end, these days!).  However, I wanted to take a moment to post some photos of the bravest boy I know.

Isaac has given us so much to be proud of throughout his 9 years.  He’s fought MPS courageously, and always with a smile on his face.  2 am MRI’s, countless trips to the hospital, brain scans, heart appointments, neurosurgeon visits – you name it, he’s done it.  Through it all, he never complains.

Today, Isaac’s been showing his new friend Jack around the hospital.  As many of you know, Jack (www.jacksjourney.ca) was diagnosed with MPS II this summer and we’ve had the fortune of being involved with his family, chipping in with whatever small amount of support we can offer.  I’m sitting at my desk shedding tears of pride as these two photos land in my inbox, photos of my son playing “big brother” to Jack.

It’s hard to define true courage – I know Isaac is brave because I’ve witnessed how well he’s dealt with the fight of his life.  But to have the courage to open up and share your experiences with someone else, with an aim of making their fight a bit easier, shows me just how incredibly courageous he is.

Fighting a life or death battle is hard, and it’s heartbreaking as a parent to watch your child deal with the disease.  The work we do is tiring, relentless and, hopefully, making a difference.  Photos like this keep us going, and I’m glad that my son (once again) is giving us the strength to keep at it.

We’re looking forward to our time together with Jack and his family – they are fighters.  And I know we’ll be celebrating together when we find our cure for our kids.

Hope you enjoy the photos.  Share as you see fit.

The photo up top shows Isaac and Jack playing at Marnie’s Lounge at Sick Kid’s Hospital this morning before treatment.  The photo below shows Isaac getting hooked up and ready for treatment.  Jack is watching intently beside him, waiting for his turn to get hooked up and for treatment to begin.  Truly precious and priceless.

With Love from a proud Dad,