THE ISAAC FOUNDATION

Love

PROVIDING SUPPORT AND ADVOCACY TO PATIENTS AND FAMILIES COPING WITH MPS DISEASES
Our Mission Statement

Our Mission Statement

 

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $750,000 to research grants that seek to cure MPS. We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.

Margaret Mead

 
 

“Run when you can, walk if you have to, crawl if you must; just never give up.”

Dean Karnazes

 

“Some of the world’s greatest feats were accomplished by people not smart enough to know they were impossible.”

Doug Larson

CROSS-CANADA RUN FOR A CURE!

Once again, THE ISAAC FOUNDATION will be participating in four race weekends as we kick off our Cross-Canada RUN FOR A CURE!

Join our team as we raise funds for The Isaac Foundation and our MPS II FUND. Runners/Walkers can participate in the 2KM Family walk/run, the 5KM, 10KM, 1/2 and Full Marathons and get pledges for our charity to support finding a cure for children affected by MPS throughout Canada and the rest of the world.

Sign up today with your team or as an individual to get your own fundraising page!

Once registered, you can login to your account to customize your Personal & Team donation pages; send emails; manage offline pledges; and view the status of your Personal & Team fundraising efforts.

Would you like to sponsor a friend or family member? Click “Sponsor a Participant” to find the person and/or team you would like to support.

REGISTER NOW!

RUNLOGO2016

News From Our Blog

We'll do our best to keep our news blog updated. Check back often to read what's happening at The Isaac Foundation and with MPS throughout Canada!

MINISTER ORDERS REVIEW OF DECISION TO DENY LIFE-SAVING DRUG

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Treatment Required Immediately For Ailing New Brunswick Boy; Family Elated With News “It doesn’t feel real.  We have hope again for our son.” – Carolle Mazzerole, Morgan’s Mom The Minister of Health in New Brunswick has ordered a full review of his recent decision to deny access to a life-saving medication to 10-year-old Morgan Doucet.  Morgan suffers from MPS IVA (Morquio Syndrome)

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HEALTH MINISTER REFUSES TO HEAR EXPERT OPINION REGARDING DENIAL OF LIFE-SAVING MEDICATION FOR MORGAN DOUCET

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Minister Refuses To Allow Renowned MPS Expert To Join Family Meeting; Doucet’s Family In Fredericton to Meet with Child And Youth Advocate Thursday The family of ailing 10-year-old Morgan Doucet has cancelled a scheduled meeting with the Minister of Health in New Brunswick after the Minister refused to allow an internationally renowned expert to participate in the discussions. Doucet’s case

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Tentative Meeting Scheduled

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Hi Everyone, As promised, I'm back to provide another update.  After speaking with the Ministry this afternoon, the Minister has set aside some time to meet with The Isaac Foundation and Morgan's parents.  Things are tentatively set for Thursday.  However, that meeting will only be taking place if the Minister agrees to have Dr. Paul Harmatz on the line from

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