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    Treatment for Morquio A Syndrome Approved!

    First treatment now available for ultra-rare disorder! The Isaac Foundation is calling on all provinces to immediately approve reimbursement so that all patients may begin treatment.

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    2014 Research Grants

    We are excited to have received some incredible applications for our 2014 Research Grants! An announcement will come shortly with the award recipients. We're making progress toward a cure for MPS, and can't thank the generosity of our supporters enough for their continued belief in The Isaac Foundation.

    Grant Info
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    Jack Fowler

    6 year-old Jack Fowler suffers from MPS II. His cognitive abilities have regressed rapidly and he needs a life-saving and very promising treatment to halt the progression of the disease. Shire Pharmaceuticals has denied him that treatment. Read Jack's Story here.

    More Info!
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    Welcome To The Isaac Foundation for MPS Treatment and Research.

    The Isaac Foundation's mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

    Latest News
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    Run For A Reason. Cure MPS.

    Our Cross-Canada RUN FOR A CURE! has already raised over $17,000 for MPS research! Find out how you can help or donate today!

    Run Info!
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    Harmatz Releases 10-year Resurvey Data

    Dr. Paul Harmtaz has released his 10-year resurvey data on MPS VI and Naglazyme ERT treatment for affected individuals, and the results are stunning. Click here to read the report!

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Love, Laughter, and Hope

www.theisaacfoundation.com

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MPS II Research Fund

In early 2013, The Isaac Foundation partnered with the MPS II Research Fund, formally with the Canadian MPS Society, as we seek the find a cure for MPS II. Please visit the Purcell's website for information on how you can help!

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Isaac's Story

Read about our son, Isaac McFadyen, who has helped pave the way for MPS VI Treatment throughout Canada. Isaac was diagnosed with MPS VI in 2006 and his courage inspired us to start The Isaac Foundation to help us find a cure!

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Media

Read about the work The Isaac Foundation has been doing for families suffering from MPS diseases throughout Canada and the rest of the world. We have updated our media section with Newspaper, Television, and Radio features.

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Love, Laughter, and Hope