What We Do

Our Mission Statement


Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $1 million to research grants that seek to cure MPS, and administer the highly successful MPS II Fund, dedicating every dollar donated to research projects around the world.  We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead

Everything. Simply. Stops.

When someone is diagnosed with a rare disease, it’s heartbreaking.  Everything. Simply. Stops.  Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease.  30% of children affected with a rare disease won’t live to see their 5th birthday.  Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering.  But there is Hope.  At the Isaac Foundation, we’re here to help.  Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone.  Please reach out to us today for help and support.


COVID-19 Update


News From Our Blog

We'll do our best to keep our news blog updated. Check back often to read what's happening at The Isaac Foundation and with MPS throughout Canada!

The End of the Beginning…

Well, this is it. Our last treatment. After 12 years of weekly infusions, today is the last one. It comes with mixed emotions, Hope, Fear, Worry, Anxiety, and Anticipation to name a few. And Gratitude. Heartfelt gratitude. When Isaac was diagnosed, we didn’t know what the future would hold. We didn’t know if he’d have a future, let alone how

Read More

Gala Announcement and Some Exciting News to Share

Hi Everyone, Just a quick note to let our families, friends, and supporters know that our Annual Gala for a Cure and Rare Disease Symposium, traditionally set to take place in November each year, will have to be postponed. Our new date is April 4-5 for the Patient Symposium and April 6th for our Gala Celebration. I hope you can

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This Beautiful Life…

Of the millions of moments you live in this beautiful life, you never know what moments are going to remain with you. Often the things that stick are small things, moments you’d never peg as being important or memorable at the moment you’re immersed in them. And then one afternoon twenty years on, or thirty or forty or even fifty years drift past,

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  • Antihero. Anti Olympic spirit, anti good human. Send him home. 👇

    Andrew McFadyen about 1 days ago
  • A sure sign of the pandemic nearing its end…I get to see “my” kids again. ❤️❤️ Kamie.

    Andrew McFadyen about 2 days ago
  • RT @ABatemanHouse: Ethicist here: for anyone who needs to hear this, it is totally fine for you, a person, to ask someone their vaccination…

    Andrew McFadyen about 2 days ago
  • Soooo - Alberta doesn’t care about 0-16 year old children who aren’t offered vaccines yet? And the dummies who don…

    Andrew McFadyen about 4 days ago
  • Yea

    Andrew McFadyen about 7 days ago


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