The Isaac Foundation



And Hope

Providing support and advocacy for patients and families coping with rare diseases.

Our Mission Statement

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided over $1 million to research grants for projects around the world that seek to cure and improve current treatments for MPS diseases. We will continue to work tirelessly to raise awareness of this disease and provide support for families dealing with this devastating diagnosis until a cure is found.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.

- Margaret Mead

Everything. Simply. Stops.

When someone is diagnosed with a rare disease, it’s heartbreaking. Everything. Simply. Stops. Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease. 30% of children affected with a rare disease won’t live to see their 5th birthday. Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering. But there is Hope. At the Isaac Foundation, we’re here to help. Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone. Please reach out to us today for help and support.


Ended 2021 Gala for a Cure Monday, December 20, 2021
Ended 2021 Patient Symposium Sunday, December 19, 2021
Ended 2020 Patient Symposium Saturday, December 12, 2020
Ended 2019 Run for a Cure Saturday, May 25, 2019
2021 Gala for a Cure

2021 Gala for a Cure


Monday, December 20, 2021 - 12:00 AM to 2:00 AM UTC
Register today for our 11th Annual Gala for a Cure ! Join us virtually on Sunday, December 19th, 2021 for a night of connection, music, and celebrating our rare disease patients.
This year's gala will be completely free of charge ; however, donations are always welcome, and all proceeds go directly into research towards finding a cure for MPS VI.


Family forced to leave Saskatchewan due to Sask. Party’s health care decisions

Published: 2021-11-16

Family forced to leave Saskatchewan due to Sask. Party’s health care decisions

REGINA - Today Official Opposition Leader Ryan Meili was joined by Kirsten Finn, mother of Conner Finn, and Andrew McFadyen...

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New children’s book release!

Published: 2021-11-01

New children’s book release!

In support of the Isaac Foundation's MPS II Research Fund

We are proud to share the a new book release, Filipou and the GIANT Apple, written by Édith Lacroix, an...

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The End of the Beginning…

Published: 2018-10-31

The End of the Beginning…

Well, this is it. Our last treatment. After 12 years of weekly infusions, today is the last one. It comes with mixed emotions...

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COVID-19 Update

Dr. Isaac Bogoch joined The Isaac Foundation at our 12th Annual Rare Disease Symposium to discuss COVID-19, the Omicron variant, rapid testing, and the impact the pandemic has had on our rare disease patients and families. He also provided some tips to help keep our kids and families safe over the holidays.

Please take some time to watch, share, and send us any questions you might have.

Click here for more educational content like this.

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