The Isaac Foundation



And Hope

Providing support and advocacy for patients and families coping with rare diseases.

What We Do Donate Now

Our Mission Statement

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided over $1 million to research grants for projects around the world that seek to cure and improve current treatments for MPS diseases. We will continue to work tirelessly to raise awareness of this disease and provide support for families dealing with this devastating diagnosis until a cure is found.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.

- Margaret Mead

Everything. Simply. Stops.

When someone is diagnosed with a rare disease, it’s heartbreaking. Everything. Simply. Stops. Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease. 30% of children affected with a rare disease won’t live to see their 5th birthday. Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering. But there is Hope. At the Isaac Foundation, we’re here to help. Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone. Please reach out to us today for help and support.

Rare Disease Day 2024

On this rare disease day, it's important to acknowledge the struggles, the triumphs, the up-and-downs, and the precious moments each of our families experience every day. Each moment is special. Every second together matters. Every experience shapes the unique perspective we have on what's truly important in this world. I think this song by captures that world so beautifully.

Thank you to all the families featured in this special piece. Personally, it's been the honour of a lifetime to have played a small role in your lives, to get to know you, to feel like you're family. I can't thank you enough for including me in your journeys and allowing me to be part of it all - the celebrations and heartache alike. I promise you that we will continue our search for cures, continue the research we know will transform lives, and continue to be by your side through it all.



2024 Curling Bonspiel Friday, March 22nd, 2024 - 7PM & 8PM Draw Learn More


2022 Gala for a Cure Sunday, December 18th, 2022 - 7PM to 9PM EST Learn More Sponsorship Opportunities


Happy New Year and update from 2023!


Happy New Year and update from 2023!

Happy New Year! Here's a quick update from 2023.

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Family forced to leave Saskatchewan due to Sask. Party’s health care decisions


Family forced to leave Saskatchewan due to Sask. Party’s health care decisions

REGINA - Today Official Opposition Leader Ryan Meili was joined by Kirsten Finn, mother of Conner...

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New book release, in support of the MPS II fund!


New book release, in support of the MPS II fund!

We are proud to share the new release, Filipou and the GIANT Apple, written by an...

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COVID-19 Update

Dr. Isaac Bogoch joined The Isaac Foundation at our 12th Annual Rare Disease Symposium to discuss COVID-19, the Omicron variant, rapid testing, and the impact the pandemic has had on our rare disease patients and families. He also provided some tips to help keep our kids and families safe over the holidays.

Please take some time to watch, share, and send us any questions you might have.

Click here for more educational content like this.

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We Want to Hear from You!


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