The Isaac Foundation


Providing support and advocacy for patients and families coping with rare diseases.

What We Do

Our Mission Statement

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided over $1 million to research grants for projects around the world that seek to cure and improve current treatments for MPS diseases. We will continue to work tirelessly to raise awareness of this disease and provide support for families dealing with this devastating diagnosis until a cure is found.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.

- Margaret Mead

Everything. Simply. Stops.

When someone is diagnosed with a rare disease, it’s heartbreaking. Everything. Simply. Stops. Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease. 30% of children affected with a rare disease won’t live to see their 5th birthday. Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering. But there is Hope. At the Isaac Foundation, we’re here to help. Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone. Please reach out to us today for help and support.

COVID-19 Update

Dr. Shaun Morris from the Hospital for Sick Children in Toronto joined us at our annual Rare Disease Symposium to discuss COVID-19, vaccines, and the impact the pandemic has had on children with rare diseases.

Please take some time to watch, share, and send us any questions you might have.

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