What We Do

Our Mission Statement


Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $1 million to research grants that seek to cure MPS, and administer the highly successful MPS II Fund, dedicating every dollar donated to research projects around the world.  We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead

7th Annual GALA FOR A CURE, featuring Danny Michel


Join us on November 11, 2017 for our  GALA FOR A CURE! in support of MPS Research. Our celebration evening this year will include wine tasting, dinner, a silent auction, a dance, awards presentations, and a special intimate musical performance by Multi-Juno Nominee Danny Michel and his band!

Tickets are $100 and each paying guest receives a $75 charitable tax receipt.  Tickets are very limited so please purchase early.

All money raised goes directly toward research projects aimed at finding a cure for MPS.  #HopeIsHere


Everything. Simply. Stops.

When someone is diagnosed with a rare disease, it’s heartbreaking.  Everything. Simply. Stops.  Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease.  30% of children affected with a rare disease won’t live to see their 5th birthday.  Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering.  But there is Hope.  At the Isaac Foundation, we’re here to help.  Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone.  Please reach out to us today for help and support.



“Run when you can, walk if you have to, crawl if you must; just never give up.”

Dean Karnazes


“Some of the world’s greatest feats were accomplished by people not smart enough to know they were impossible.”

Doug Larson

Once again, THE ISAAC FOUNDATION will be participating in five race weekends as we kick off our Cross-Canada RUN FOR A CURE!

Join our team as we raise funds for The Isaac Foundation and our MPS II FUND. Runners/Walkers can participate in the 2KM Family walk/run, the 5KM, 10KM, 1/2 and Full Marathons and get pledges for our charity to support finding a cure for children affected by MPS throughout Canada and the rest of the world.

Sign up today with your team or as an individual to get your own fundraising page!

Once registered, you can login to your account to customize your Personal & Team donation pages; send emails; manage offline pledges; and view the status of your Personal & Team fundraising efforts.

Would you like to sponsor a friend or family member? Click “Sponsor a Participant” to find the person and/or team you would like to support.



News From Our Blog

We'll do our best to keep our news blog updated. Check back often to read what's happening at The Isaac Foundation and with MPS throughout Canada!

It's Never Easy Saying Goodbye – Lucas Braun, 1997-2017

Every second we get to share with those we love in this beautiful world are important.  Every memory made, every laugh, every tear.  Every hand held, every hug given and received.  They all matter.  In his short 20 years in this world, Lucas knew just that, and he made each and every moment special - for him and for others.

Read More


Today, I popped my head out of my hidey-hole for a little while to do a little bit of work that was important to me.  It was tough - I've purposely left everything aside for a while as we all huddle together as a family and prep for Isaac's surgery. Which is tomorrow. I purposely let my world stop turning.

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War of My Life…

At night while snuggling with Mom, he's been asking if there will ever be a surgery that he doesn't wake up from.  Quietly with me, he's asking how people who are paralyzed from the waist down use the bathroom. Good lord, I don't want him to be afraid. I've often said the most difficult thing about this journey has

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  • RT @jaketapper: An honest person would go and read the transcript and see what the student said, post the full remarks, and apologize. A…

    Andrew McFadyen about 4 hours ago
  • RT @CADTH_ACMTS: Join us February 27! If you can't join us in person, you can join us via live stream for our #CADTHTalks on “Gene Therapy:…

    Andrew McFadyen about 4 hours ago
  • RT @ArthurCaplan: Tell streaming services: Stop the NRA from spreading its hateful rhetoric and DUMP NRATV! #DumpNRATV #BoycottNRA https://…

    Andrew McFadyen about 4 hours ago
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    Andrew McFadyen about 5 hours ago
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    Andrew McFadyen about 7 hours ago


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