THE ISAAC FOUNDATION

LOVE

PROVIDING SUPPORT AND ADVOCACY FOR PATIENTS AND FAMILIES COPING WITH RARE DISEASES
What We Do
our-mission-statement

Our Mission Statement

 

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $1 million to research grants that seek to cure MPS, and administer the highly successful MPS II Fund, dedicating every dollar donated to research projects around the world.  We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

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Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead
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9th Annual GALA FOR A CURE!

Join us for our annual GALA FOR A CURE (online version)! This virtual event will feature a festive holiday program for the whole family, including music, interviews, patient stories, and more.

Expect musical performances by Juno Award Nominee, Danny Michel, Claudia Bouvette and Edouard Legace, and Kasador.
Since this event is via Zoom, the dress code is whatever you’d like it to be! We suggest going the “Ugly Holiday Sweater” route and we’ll have a prize for the best sweater.

We’re also hosting a room decorating contest with a sweet prize delivered to the winning families!
This hasn’t been an easy year for anyone, so we’re looking forward to finding some merriment with all of you. Our focus is on connecting vs fundraising, so tickets are completley free – hope to see you all on Saturday, December 12th from 7-9PM EST!

**We’ll be sending out the Zoom link in early December, to everyone who has registered.

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2019 RUN FOR A CURE!

“Run when you can, walk if you have to, crawl if you must; just never give up.”

Dean Karnazes

 

“Some of the world’s greatest feats were accomplished by people not smart enough to know they were impossible.”

Doug Larson

Once again, THE ISAAC FOUNDATION will be participating in five race weekends as we kick off our Cross-Canada RUN FOR A CURE!

Join our team as we raise funds for The Isaac Foundation and our MPS II FUND. Runners/Walkers can participate in the 2KM Family walk/run, the 5KM, 10KM, 1/2 and Full Marathons and get pledges for our charity to support finding a cure for children affected by MPS throughout Canada and the rest of the world.

Sign up today with your team or as an individual to get your own fundraising page!

Once registered, you can login to your account to customize your Personal & Team donation pages; send emails; manage offline pledges; and view the status of your Personal & Team fundraising efforts.

Would you like to sponsor a friend or family member? Click “Sponsor a Participant” to find the person and/or team you would like to support.

REGISTER NOW!

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Everything. Simply. Stops.


When someone is diagnosed with a rare disease, it’s heartbreaking.  Everything. Simply. Stops.  Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease.  30% of children affected with a rare disease won’t live to see their 5th birthday.  Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering.  But there is Hope.  At the Isaac Foundation, we’re here to help.  Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone.  Please reach out to us today for help and support.

news

News From Our Blog

We'll do our best to keep our news blog updated. Check back often to read what's happening at The Isaac Foundation and with MPS throughout Canada!

The End of the Beginning…

Well, this is it. Our last treatment. After 12 years of weekly infusions, today is the last one. It comes with mixed emotions, Hope, Fear, Worry, Anxiety, and Anticipation to name a few. And Gratitude. Heartfelt gratitude. When Isaac was diagnosed, we didn’t know what the future would hold. We didn’t know if he’d have a future, let alone how

Read More

Gala Announcement and Some Exciting News to Share

Hi Everyone, Just a quick note to let our families, friends, and supporters know that our Annual Gala for a Cure and Rare Disease Symposium, traditionally set to take place in November each year, will have to be postponed. Our new date is April 4-5 for the Patient Symposium and April 6th for our Gala Celebration. I hope you can

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This Beautiful Life…

Of the millions of moments you live in this beautiful life, you never know what moments are going to remain with you. Often the things that stick are small things, moments you’d never peg as being important or memorable at the moment you’re immersed in them. And then one afternoon twenty years on, or thirty or forty or even fifty years drift past,

Read More

twitter
  • @HollyLynchez Amazing. @Grover is my favourite muppet, tied with @GonzotheGreat. Might have to leap back into polit… https://t.co/8ka3Be7zHC

    Andrew McFadyen about 4 hours ago
  • @DrJFriedman Is it possible these asymptomatic cases could be the culprit of some untraceable community spread?

    Andrew McFadyen about 7 hours ago
  • 👇👇 https://t.co/C9MnVdVgk2

    Andrew McFadyen about 7 hours ago
  • RT @BogochIsaac: Unsolicited advice for mental & physical health during lockdowns: Where possible, once per day, try to... 1. Connect wit…

    Andrew McFadyen about 2 days ago
  • @gerrydee @ArthurCaplan - this really is a Canadian show you’d love 🙂

    Andrew McFadyen about 3 days ago
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