THE ISAAC FOUNDATION

LOVE

PROVIDING SUPPORT AND ADVOCACY FOR PATIENTS AND FAMILIES COPING WITH RARE DISEASES
What We Do
our-mission-statement

Our Mission Statement

 

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $1 million to research grants that seek to cure MPS, and administer the highly successful MPS II Fund, dedicating every dollar donated to research projects around the world.  We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

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Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead
seventh-annual-gala-for-a-cure-featuring-danny-michel

GALA FOR A CURE, featuring Danny Michel

Join us on May 5, 2018 for our  GALA FOR A CURE! in support of MPS II Research. Our celebration evening this year will include wine tasting, dinner, a silent auction, a dance, awards presentations, and a special intimate musical performance by Multi-Juno Nominee Danny Michel and his band!

Tickets are $100 and each paying guest receives a $50 charitable tax receipt.  Tickets are very limited so please purchase early.

All money raised goes directly toward research projects aimed at finding a cure for MPS II.  #HopeIsHere

everything-simply-stops

Everything. Simply. Stops.


When someone is diagnosed with a rare disease, it’s heartbreaking.  Everything. Simply. Stops.  Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease.  30% of children affected with a rare disease won’t live to see their 5th birthday.  Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering.  But there is Hope.  At the Isaac Foundation, we’re here to help.  Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone.  Please reach out to us today for help and support.

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2017 RUN FOR A CURE!

“Run when you can, walk if you have to, crawl if you must; just never give up.”

Dean Karnazes

 

“Some of the world’s greatest feats were accomplished by people not smart enough to know they were impossible.”

Doug Larson

Once again, THE ISAAC FOUNDATION will be participating in five race weekends as we kick off our Cross-Canada RUN FOR A CURE!

Join our team as we raise funds for The Isaac Foundation and our MPS II FUND. Runners/Walkers can participate in the 2KM Family walk/run, the 5KM, 10KM, 1/2 and Full Marathons and get pledges for our charity to support finding a cure for children affected by MPS throughout Canada and the rest of the world.

Sign up today with your team or as an individual to get your own fundraising page!

Once registered, you can login to your account to customize your Personal & Team donation pages; send emails; manage offline pledges; and view the status of your Personal & Team fundraising efforts.

Would you like to sponsor a friend or family member? Click “Sponsor a Participant” to find the person and/or team you would like to support.

REGISTER NOW!

news

News From Our Blog

We'll do our best to keep our news blog updated. Check back often to read what's happening at The Isaac Foundation and with MPS throughout Canada!

This Beautiful Life…

Of the millions of moments you live in this beautiful life, you never know what moments are going to remain with you. Often the things that stick are small things, moments you’d never peg as being important or memorable at the moment you’re immersed in them. And then one afternoon twenty years on, or thirty or forty or even fifty years drift past,

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It's Never Easy Saying Goodbye – Lucas Braun, 1997-2017

Every second we get to share with those we love in this beautiful world are important.  Every memory made, every laugh, every tear.  Every hand held, every hug given and received.  They all matter.  In his short 20 years in this world, Lucas knew just that, and he made each and every moment special - for him and for others.

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Today

Today, I popped my head out of my hidey-hole for a little while to do a little bit of work that was important to me.  It was tough - I've purposely left everything aside for a while as we all huddle together as a family and prep for Isaac's surgery. Which is tomorrow. I purposely let my world stop turning.

Read More

twitter
  • RT @skllabrie77: Don't put my kids at risk @LisaThompsonMPP! Students, parents, voters from all parties & religions want you to protect kid…

    Andrew McFadyen about 55 minutes ago
  • @CameronMcFadyen Hah, Cam.

    Andrew McFadyen about 2 days ago
  • @Acosta Touché, Jim. Well done.

    Andrew McFadyen about 2 days ago
  • RT @Acosta: #wherearethetapes https://t.co/CiMvUTV54M

    Andrew McFadyen about 2 days ago
  • RT @Jordanfabian: Just extending some professional courtesy. All of us in that room are trying to do our jobs and it's important the press…

    Andrew McFadyen about 3 days ago
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