Our 7th Annual Patient Symposium will take place on Sunday, December 18th from 10am - 4pm EST , followed by our Gala for a Cure from 7pm - 9pm EST.
Connect with other rare disease families and patients from across the country. Through a combination of presentations, panel discussions, and breakout sessions, you'll hear from medical professionals specializing in these rare disorders. We'll discuss mental health, clinical trials, the latest research, advocacy, and opportunities to connect with other families in breakout sessions.
A speaker list and agenda will be available shortly. The morning sessions will be relevant for all families, and the afternoon sessions will focus on MPS clinical trial updates.
Children's Program and Meals
For immediate households of a rare disease family, there will be a virtual children's program, and for families in North America, we will be shipping you lunch and dinner ahead of time. Households will also be eligible for child care reimbursement if required (please email us for more information - contact info is below).
Registration
Registration is free of charge, but required, so please register as soon as possible! For rare disease families who wish to join for the children's program and/or receive meal kits, the registration deadline is Monday, December 5th. Registrations after December 5th will not include meals or supplies for the children's program.
