Our 7th Annual Patient Symposium will take place on
Sunday, December 18th from 10am - 4pm EST, followed by our Gala for a Cure from 7pm - 9pm EST.
Connect with other rare disease families and patients from across
the country. Through a combination of presentations, panel
discussions, and breakout sessions, you'll hear from medical
professionals specializing in these rare disorders. We'll discuss
mental health, clinical trials, the latest research, advocacy, and
opportunities to connect with other families in breakout sessions.
A speaker list and agenda will be available shortly.
The morning sessions will be applicable for all families, and will
focus on mental health topics that are especially relevant for
individuals living with a rare disease and their families. We will
end the morning with breakout sessions, where you will have the
chance to meet, share, and connect with other families. During the
afternoon, we will hear from an incredible team of experts as they
discuss current and future clinical trials for patients with MPS I,
MPS II, MPS IV, and MPS VI.
Registration
Registration is free of charge, but required, so please register as
soon as possible! We look forward to seeing you (virtually) on
December 18th! We hope you'll also join us after the Symposium for
our 12th annual Gala for a Cure. This festive event will include
musical acts, stories, and more, and is open to anyone who would
like to watch.
