7 January, 2014 mcfadyena

Meeting Scheduled – CEO Flemming Ornskov

photoHi Everyone,
Just a quick note to thank you for the tremendous support the Fowler family has received as they seek to #SaveJack. Over the past few weeks, hundreds of email messages of support were sent to Shire CEO Flemming Ornskov, the person who made the decision not to provide life-sustaining treatment for Jack.

Yesterday, hundreds and hundreds of people telephone Mr. Ornksov to personally express their heartbreak and anger over Shire’s decision. Today, Shire reached out to the Fowler family to schedule a meeting between the Fowlers, The Isaac Foundation, and CEO Flemming Ornskov. We are hopeful this meeting will take place in Chicago next Saturday, January 18th.

We ask that you continue to share Jack’s Story, continue to express your feelings on the decision to deny Jack treatment directly to the decision makers, and to continue to keep Jack and his family in your prayers.

We will update you as soon as we have more information.

Thanks again for your incredible support.

With Love,
The Isaac Foundation